Consumers need access to information and resources about genetic information in a manner that is understandable. Librarians working with the public need to be aware of the issues surrounding genetics and resources to assist patrons in locating and evaluating sometimes complex and confusing information. This class explores basic concepts such as genes and chromosomes and offers an overview of genetic disorders, genetic testing, genetic counseling, and the Human Genome Project. Ethical and legal issues associated with genetic disorders will be covered with regard to privacy, discrimination, and potential legislative impact on medicine and society. A variety of reliable health information resources will be demonstrated, including, but not limited to: Genetics Home Reference, ClinicalTrials.gov, NORD (National Organization for Rare Disorders), and MedlinePlus. This 4-hour hands-on class is intended for consumers, public librarians, and health sciences librarians who work with the public.
This class is sponsored by the WNYLRC HLSP, WNYLRC Committee for Health Information Access and the UNYOC Chapter/MLA. We encourage registration of staff from all types of libraries to attend as this is a basic course and is eligible towards the MLA Consumer Health Information Specialization. Continental breakfast will be provided.
Carrie Iwema is the instructor via the National Network of Libraries of Medicine, Middle Atlantic Region, Regional Medical Library.